Big decision for my treatment

Hey again :) 

So I decided to make the blog as i had to make a big decision over past few months about my treatment. I'm currently on Iloprost i teak it by inhaling it into my lungs using a nebuliser.  Iloprost has to be taken about six or seven times a day. This is because it lasts about 1 or 2 hours in the bloodstream. im currently teaking this 6x but i get about 4 or 5 a day. Iv been on this for around 15 years but it used to big a big box that would of carried in a back pack but as time went on got smaller and smaller.

It looks a bit like this now :)  

But iv made a big decision to get a hickman line (pump) as doctors dont think im getting enough from my nebuliser to do day to day things so ill explain wee bit about it:
Iloprost is given intravenously (injected directly into a vein) via a permanent catheter (a thin, flexible tube that is inserted into a vein). This catheter is called a Hickman line.

Iloprost is continuously pumped into the body by a portable, battery-operated pump. It must be given this way because it only lasts for 3–5 minutes in the bloodstream. The pump attaches to the Hickman line via a thin plastic tube. The pump is worn attached to a belt around the waist.

I will be going into hospital for up to 2 weeks at Newcastle upon tyne :( scary as I hate hospitals I never seem to sleep and i don't like it when i'm sharing with people id rather have my own wee room. I will be going over on the 13th may :( but im planing on keeping busy and not think about it. I will be awake when the line is getting put in ill just have some anasthetic to numb around where line will be put in.  I'm not feeling as nervous as I was as one of my friends Stacie has just had her line put in today so it dosent seem as bad and now I sort of know what to expect :D but i'm still a bit  worried. 


Im going to try keep my self busy with tech/college work and car cruises and shows and do a few things to car keep me busy, oh and lots of shopping for stuff to bring with me :D. Thats about it easy was to explain about the hickman line :D 

Jemma Xo